Beyond the orbit: TED damage is also psychosocial
Thyroid eye disease can have a significant impact on each individual patient, though the manifestations are not always visible. Pain, impairment of sight, depression, and loss of self-confidence all have a substantial effect on patients’ well-being.7,12,21
A variety of studies and surveys have shown
how TED affects patient quality of life:
surveyed in a single-center Australian study said the changes TED had caused to their appearance significantly interfered with psychosocial functioning (N=128)20
in a controlled, prospective, descriptive study at a German orbital clinic reported a loss of self-confidence due to their disease (N=250)19
at a German academic clinic who responded to a questionnaire on quality of life and use of psychotherapy reported emotional distress, including 40% reporting anxiety and 22% depression (N=102)21
in a single US county who were surveyed in a long-term study with a median follow-up of nearly 10 years were dissatisfied with their appearance, including some even after surgery (N=120)17
TED has a measurable, substantial impact on patients’ livelihoods as well.
In an observational study at a German orbital specialty clinic,
more than 30% of patients missed at least 1 full
month of work due to their TED (n=196)19
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